Monday, 25 June 2012
Since the Tourette's Docu TLC
Things have been going great since the release of our documentary on National geographic Strange Behaviour ( Taboo ) Tourette’s and other disorders; We have been over whelmed by people’s reactions all very positive. Whilst bring Tourette syndrome back into the public eye, I have found it has also opened up an avenue for other folk, to talk about their own problems in life.
Since the start of TLC, we have had some great integration nationwide with others living with Tourette Syndrome and other support groups, and we a found this very encouraging seeing others just getting on with life like everyone else, parents bringing up children, children being educated, and teenagers going through teen problems, but with the added burden of TS, and the inspiration that this brings, and this is one of the most important factors when diagnosed with TS, build a good support network around you with family ,friends, support groups and Tourette Associations, and knowing you are not alone is one of the biggest ways of staying strong and getting on with life.
Even though we are no were near our goal of raising enough money to buy a holiday home or holiday caravan, this has not stopped us from providing breaks either by getting together or trips out like our recent TLC sea fishing trip, were Adults, teenagers and children all living with Tourette’s and other things like OCD, ADHD, sensory processing dysfunction, and other things associated with TS, all having a great time, doing something different having a chance to smile, have a laugh, relax and recharge our batteries, so we can go back home and carry on with our everyday lives.
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That's Great News!! It always helps you to feel valued and not isolated when there is someone as approachable and knowledgeable as TLC.
ReplyDeleteI really liked the segment on Taboo. All three men seem like lovely guys and i wish them nothing but the best. I was wondering if there is any link to donate to the foundation? Thanks!
ReplyDeleteHi thank you so much for contacting us and so glad you enjoyed the docu,This is Paul and if you wish to donate anything it will be gratefully appreciated once more thank you and take care http://www.tourettes-action.org.uk/tlc/
DeleteWe can be contacted at
Deletehttp://www.tourettes-action.org.uk/tlc/
http://www.tourettes-action.org.uk/pauls-photography/
I'm going to be moving to Epsom for University in the fall and would love to ne in touch with other people who have TS, since I'll be so far from home. (I currently live in Philadelphia). Does TLC host retreats, support groups or any other events??
ReplyDeleteI loved the documentary by the way and love what you are doing.!
-Lauren
Hi Lauren,
ReplyDeletethanks for taking time to respond to the documentary,and good news on you attending university over here in the UK. TLC as a big network of friends across the UK who are all members of Tourette's action and im am sure you will be welcomed and find support from others who live with TS ,you can contact us at the link below ,please take care
Regrads
Paul
http://www.tourettes-action.org.uk/tlc/
I've seen where Deep Brain Stimulation surgery eradicates the ticks. Why isn't this used more often? It is the expense or surgical risks or...? Does insurance cover it?
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