TLC Tourette family Gathering

This is part one written my Paul Stevenson more to follow from Stu ( Chopper ) and Johnny Davidson

20th 21st of Oct 2012 Was the date of our TLC Tourettes Gathering a two day residential, held were families living with Tourette Syndrome, children and adults ,Mums and Dads ,brothers and sister, from all over the country can come together for this residential event , it was amazing to see folk from every back ground join together unified, irrespective of colour, age, gender and religion or location.

This was the plan for the weekend TLC Group Gathering Saturday 12.00pm - Arrive at Centre Tea/Coffee (Café) 1.00pm - Lunch (Main Hall) 1.45pm - Shown Sleeping Accommodation 2.15pm - Settle In And Get To Know People 2.30pm - Magic Show for Kids (Tee Jay) Pool, Table Tennis, Table Football Arts and Crafts, Rounders or Football Adults - Chance for Discussion Poker Run 2013 5.00pm- Order Food (Chinese-Indian-Chippy) Pool Competition/Killer Darts 6.00pm - Evening Meal (Main Hall) Set Hall For Evening Entertainment 7.30pm - Start Of Quiz (Mixed Teams of 8) (Main Hall) 8.30pm - Karaoke (Main Hall) 10.30pm - Socialise and Possible Sing-Song TLC Group Gathering Sun 21st Oct 2012 Programme Sunday Morning 10.00am - Breakfast In Main Hall (Scottish) 11.00am – Everyone Helping To Tidy Up 12.00pm – Tea/Coffee and Chat 1.00pm – Prepare for Departure A massive thank-you to everyone who attended and we hope you all enjoyed yourselves and hope to see you all again soon. John-Jojo-Stu-Paul-Dot TLC Co-Ordinators .

Quiz Time with Tommy And a good time was had by all, one of the highlights of the weekend was the quiz, i suppose it was always going to be a tall order for poor Tommy the quiz master asking question to a room full of folk with tourettes all shouting out the answers as well as many other vocal tic's ,Tommy's professionalism shone through . More to follow soon :)

TLC Poker Run

The weekend’s charity Poker Run in aid of TLC ( Tourette's Life Long Care ) was a great success, and we would like to thank all involved. The days rally across three Scottish Border Towns went well as the rally travelled from Galashiels to Hawick then across to Jedburgh taking in some of the most beautiful scenery that the borders as to offer the journey then finished off taking in the Border towns of Kelso then via Earlston finishing back at Langlee, Galashiels .

The day’s activities were followed by an evening of entertainment, provided free by two of the Lothian and Borders' favourite bands - Three Wise Monkeys and Crevis. And a big thank you to the organisers Michela Hunt , Johnny D And also Tommy for the catering , and the rest of the TLC group for their support and also in cleaning up after the event. And last but not least this Poker Run couldn’t have taken place without the generosity and support of all you guys who brought yourselves and your bikes and took part in the rally

Charity Poker Run

Come and join us for a charity poker run in support of TLC Borders (Tourettes Action). Travel round 5 Border Town collecting your winning hand. Entry fee will be £5.00 per vehicle (this will gain you entry to the evening entertainment too) - all motorbikes, trikes, scooters and cars welcome. If you can't make it for the poker run please come and join us for the evening entertainment supplied by three of Lothian and Borders' favourite bands - Three Wise Monkeys, Pyre and Crevis- for a measly £2.50 BYO drinks and camping available BBQ on the night All proceeds will go towards supplying holiday/respite accommodation for people living with Tourette Syndrome

Since the Tourette's Docu TLC

Things have been going great since the release of our documentary on National geographic Strange Behaviour ( Taboo ) Tourette’s and other disorders; We have been over whelmed by people’s reactions all very positive. Whilst bring Tourette syndrome back into the public eye, I have found it has also opened up an avenue for other folk, to talk about their own problems in life. Since the start of TLC, we have had some great integration nationwide with others living with Tourette Syndrome and other support groups, and we a found this very encouraging seeing others just getting on with life like everyone else, parents bringing up children, children being educated, and teenagers going through teen problems, but with the added burden of TS, and the inspiration that this brings, and this is one of the most important factors when diagnosed with TS, build a good support network around you with family ,friends, support groups and Tourette Associations, and knowing you are not alone is one of the biggest ways of staying strong and getting on with life. Even though we are no were near our goal of raising enough money to buy a holiday home or holiday caravan, this has not stopped us from providing breaks either by getting together or trips out like our recent TLC sea fishing trip, were Adults, teenagers and children all living with Tourette’s and other things like OCD, ADHD, sensory processing dysfunction, and other things associated with TS, all having a great time, doing something different having a chance to smile, have a laugh, relax and recharge our batteries, so we can go back home and carry on with our everyday lives.

Strange Behavior Tourettes and other Disorders

National Geographic Strange Behavior ( taboo ) Tourettes and other disorders ,This is the Documentary Chopper, Johnny Davidson and myself made last year which shows our lives, living with Full blown Tourette Syndrome and has a team TLC we try to raise awareness and help support other people living with the condition

Tourette Syndrome awareness month , Living with Tourette's , The Tic's are just the tip of the iceberg http://www.tourettes-action.org.uk/types-of-tic/ !

TLC - Tourette's Lifelong Care - is a support group for people with Tourette's Syndrome

TLC - Tourette's Lifelong Care - is a support group for people with Tourette's Syndrome and associated conditions (ADHD, OCD, Aspergers etc.) and their friends and family. The purpose of creating TLC was to provide ground-level support for individuals and families in need, regardless of geographical location and without the requirement for a formal membership. One of the fundamental policies of TLC is that the absolute maximum percentage of funds raised or donated will be channelled towards support.With the intention of providing support and respite to families and individuals living with Tourette Syndrome. Three of our founding members, John Davidson, Paul Stevenson and Stuart 'Chopper' Colquhoun and so with a number of like-minded friends, set the wheels of TLC in motion. written by Stuart 'Chopper' Colquhoun.

Intro from one of our founding members Dottie

Why TLC? Everyone needs and deserves tender loving care. Why not use these initial to say Tourette's Lifelong Care. That is what people who experience this condition need and deserve. A group is needed to welcome all affected by Tourette syndrome. A group where lifelong friendships are made. A group which is not restricted by geographical distance, which is in the interests of all, regardless of social standing, or academic status. The aim of this group should be to empower each other and work with people's strengths but also to be deliberately non- higherarchical. Dorothy Achenbach (Dottie)

Hi All, just thought i would let you all know about a canvas photo art exhibition now on at Berwick Upon Tweed Library , to highlight and also raise awareness of the new Tourette's support group here in the borders . TLC - Tourette's Lifelong Care in association with Tourette’s Action - is a support group for people with Tourette's Syndrome and associated conditions (ADHD, OCD,) and their friends and family. The purpose of creating TLC was to provide ground-level support for individuals and families in need, regardless of geographical location and without the requirement for a formal membership. One of the fundamental policies of TLC is that the absolute maximum percentage of funds raised or donated will be channelled towards support. With the intention of providing support and respite to families and individuals living with Tourette Syndrome. Three of our founding members, John Davidson, Paul Stevenson and Stuart 'Chopper' Colquhoun and so with a number of like-minded friends, set the wheels of TLC in motion. many thanks

More info to follow soon Thank you for your patience

Tourettes Life Long Care TLC